Rebecca Callaghan’s pregnancy in 2012 was far from easy. Complications during her term made it necessary for doctors to intervene and deliver her baby early. That baby, named Matilda, came into the world just like any other newborn—seemingly healthy and without immediate concern. But only thirty minutes after birth, doctors noticed something unusual: a large blue mark appeared on her face and stretched down her torso. At first, they thought it might be a bruise from labor. However, further examinations revealed that it was a birthmark, a signal of something more serious.

Two weeks later, baby Matilda was officially diagnosed with Sturge-Weber syndrome, a rare neurological disorder. This condition can cause significant health challenges, including seizures, skin abnormalities, developmental delays, and paralysis. It was a diagnosis that turned the family’s world upside down. With so many unknowns and medical complications, her parents found themselves in a terrifying new chapter of their lives—one full of hospital visits, sleepless nights, and emotional struggles.

Due to the severity of her condition, Matilda had to be rushed to Alder Hey Children’s Hospital in Liverpool for urgent care. Her parents couldn’t even ride with her in the ambulance. Her father later told The Daily Mail about the fear they felt watching their daughter being taken away so soon after birth. “We weren’t sure if we’d see her again,” he said. “It was terrifying to watch her being carried away.”

As if Sturge-Weber syndrome wasn’t enough, doctors also discovered that Matilda had two congenital heart defects. These complications required surgeries, and the risks were high. But Matilda fought through every procedure with strength beyond her years. Over time, she began laser treatments to reduce the visibility of her birthmark. While the treatment is cosmetic in nature, it also helps reduce potential skin complications related to her condition. Her therapy will likely continue well into her teenage years.

After each laser session, Matilda’s skin becomes red, swollen, and irritated. To an outsider unfamiliar with her medical journey, it can look worse than it truly is. Her father admitted how painful it is when strangers make assumptions or cast judgment. “It’s upsetting and difficult when people think we’ve done something to her,” he said. “They don’t understand what she’s going through.”

Despite her medical battles, Matilda continues to be a source of joy and light for her family. She’s full of energy and spirit, facing life’s challenges with a smile that warms the hearts of those around her. Unfortunately, her unique appearance often draws unwanted attention in public. Some people, without thinking, ask her parents if she was burned by a radiator. While these comments sting, her father hopes people will take the time to look past the surface and see Matilda for who she truly is—a sweet, resilient, and inspiring little girl.

Though her journey hasn’t been easy, Matilda keeps pushing forward. She experiences mobility challenges and visual impairment, but that hasn’t stopped her from taking steps on her own with the help of a customized walking frame. Her father beams with pride as he describes her determination and independent nature. “She’s fiercely independent,” he says. “Her positive energy leaves a mark on everyone she meets. Every day with her is a gift.”

Now eight years old, Matilda is in need of a new wheelchair that will offer her more comfort, support, and mobility. This specially designed chair will allow her to keep doing the things she loves—especially exploring the outdoors, one of her favorite activities. To make this happen, the family launched a crowdfunding campaign with the goal of raising $6,300. The funds will cover the cost of the new wheelchair and help enhance her quality of life.

Matilda’s story is one of resilience, love, and courage. It’s a reminder of how much strength can live inside a small child—and how a family’s devotion can carry them through the toughest of times. Her parents invite everyone to share her journey and support their campaign. By contributing or simply spreading the word, you can help give Matilda the mobility she deserves and the chance to keep exploring the world on her terms.